Act Now

Update: July 3, 2019

The Office of Civil Rights of the Department of Health and Human Services (HHS) has issued a new proposed rule that would significantly weaken the current rules interpreting Section 1557 of the Affordable Care Act (ACA).  Section 1557 prohibits discrimination by health programs or facilities that receive federal funds from discriminating based on race, color, national origin, age, disability, or sex.  The public can submit comments before August 13th.  It is critical that you make your voice heard opposing these rollbacks in the ACA’s discrimination protections. For an analysis of all of the changes proposed to Section 1557, see here.  To submit a comment directly to the federal register, click here and follow the instructions on the page. 

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Get involved! 

You can help protect Medicaid by telling  your Members of Congress to:

Call your Members of Congress:

  1. Call the Capitol Switchboard at: (202) 224-3121(voice) or (202) 224-3091(tty) and ask to be connected to your senators or representatives.
  2. You can use this easy tool to find your members of Congress.
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Key Facts

  1. 10 million people with disabilities rely on Medicaid for critical services that help them live and participate in their community.
    • Many people with disabilities are unaware that the services they receive are part of Medicaid. Services funded through Medicaid may be called something else in your state. If you’re a person with a disability and you receive any community-based support, its very likely through Medicaid.
    • Eg: nursing and personal care services, specialized therapies, intensive mental health services, special education services, employment supports, and other needed services that are unavailable through private insurance.
  2. Cuts to Medicaid would force states to reduce services, cut optional services, restrict eligibility, and increase waiting lists.
  3. The home and community based services (HCBS) on which people with disabilities rely to live and participate in their communities are especially at risk because they are optional and could be completely eliminated.
  4. People with disabilities will be disproportionally harmed by Medicaid cuts. Services and supports for people with disabilities makes up a significant part of state Medicaid budgets due to their long term care needs.
  5. Tell your member of Congress to oppose any cuts to Medicaid, Medicare or other programs.
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If you’re nervous or not sure what to say, get started with this easy script.

Fight Proposed Changes that Hurt Medicaid:

Any time the administration wants to change a rule or policy, it must publish the proposed changes and allow the public to comment on them. The administration needs to respond to all of these comments before any changes can go into effect.

You can help protect Medicaid by commenting:

  • OPPOSE states that try to put work requirements into Medicaid.
    • Follow which states have pending proposals to make it harder for people to access Medicaid.
  • We’re still waiting on the Public Charge proposed changes and other proposals that would undermine the Affordable Care Act. When they become available, we will post resources for you to fight back!

Don’t Stop There:

We need every person to get engaged in advocacy to protect Medicaid now! Visit your Senators, join in rallies and protests, and engage in social media to talk about why Medicaid is so important to you and what dramatic cuts or changes would mean.

  • Tell your story – talk to your friends, neighbors, coworkers. Tell them why Medicaid is so important to you, your family, and your community. Invite them to join our fight.
  • Educate your representatives – in Congress, Governors, and State Legislators
  • Stay Informed– visit our learn more page and the sites of other disability advocates. You can also sign up for our  email list or follow us on Facebook.
  • Engage the mediawrite an op-ed for your local news outlet.