Personal Stories

Update: December 20, 2017

Today Congress passed the Tax Cuts and Jobs Act.  We are of course disappointed that we were not ultimately able to stop this bill.  But because of your advocacy, many of the most harmful tax provisions for people with disabilities were not included in the final bill.  We remain concerned that Congress will next turn to cutting Medicaid, Medicare and other critical programs to pay for the tax bill.  But again, your efforts to educate members of Congress and the public about how important Medicaid is to people with disabilities will help us in the next fight.  Thank your hard work, and rest up for what's ahead.

You can get more information on the final bill here or in this chart of major provisions here.


Personal stories are the most effective form of advocacy. Talk about why is Medicaid important to you.  

  • If you or a family member are on Medicaid (including a waiver), what are the most important services to you? What difference has that made in yours and/or your family member’s lives?
    • Access to critical healthcare or therapies
    • Ability to receive in-home supports, residential supports or live independently
    • Ability to work or go to a day program (so your family can work)
  • What was your and/or your family member’s lives like before receiving Medicaid services?
  • Are you or a family member on a waitlist for Medicaid services? How would getting services make a difference in your lives?