Personal Stories

Update: January 25, 2019

Today, thanks to advocates like you, H.R. 259, the Medicaid Extenders Act, the short-term Money Follows the Person (MFP) Program and spousal impoverishment protections extension bill, was signed into law.  The Act provides three months of MFP funding (states have until Sept 31, 2019 to spend it) and extends the HCBS Medicaid spousal impoverishment protections until March 31, 2019.  We’ll keep working for a longer extension, since it's only short-term, but for now, we celebrate the victory and thank you for your hard work!


Personal stories are the most effective form of advocacy. Talk about why is Medicaid important to you. 

  • If you or a family member are on Medicaid (including a waiver), what are the most important services to you? What difference has that made in yours and/or your family members lives?
    • Access to critical healthcare or therapies
    • Ability to receive in-home supports, residential supports or live independently
    • Ability to work or go to a day program (so your family can work)
  • What was your and/or your family members lives like before receiving Medicaid services?
  • Are you or a family member on a waitlist for Medicaid services? How would getting services make a difference in your lives?