Personal Stories

Update: May 2, 2019

On May 1, 2019, the Department of Justice (DOJ) filed a brief on behalf of the Trump Administration in the lawsuit challenging the Affordable Care Act (ACA).  DOJ for the first time argued that the entire ACA should be struck down, including the protections for people with pre-existing conditions, rather than just the “individual mandate” to have insurance.  Last month, a number of disability organizations, including CPR, filed a brief describing the importance of the ACA to people with disabilities. This case will likely be decided late this summer, and then head to the Supreme Court in the fall.  The ACA remains in effect during the lawsuit. To learn more about the case and other attacks on the ACA, please click here.


Personal stories are the most effective form of advocacy. Talk about why is Medicaid important to you. 

  • If you or a family member are on Medicaid (including a waiver), what are the most important services to you? What difference has that made in yours and/or your family members lives?
    • Access to critical healthcare or therapies
    • Ability to receive in-home supports, residential supports or live independently
    • Ability to work or go to a day program (so your family can work)
  • What was your and/or your family members lives like before receiving Medicaid services?
  • Are you or a family member on a waitlist for Medicaid services? How would getting services make a difference in your lives?